Rare disease day aims to raise awareness for diseases that are not widely known.  A lot of rare diseases go undiagnosed.  Due to lack of unscientific information, there are not cures for many of the diseases.

How to get involved:

1.       Use the hashtag #RareDiseaseDay and create a post raising awareness for a rare disease.

2.       Create and event for your friends and family to raise money for a rare disease you want to donate to.

3.       Create a video.  The goal can simply be to help others understand what you’re living with on a daily basis as a result of your rare disease. It can also be a call to action: Consider challenging people to do something in support of your illness. Some of you may remember the Ice Bucket Challenge that circulated on social media a couple of years ago, which ended up having a huge impact on the research being conducted on ALS.

4.       Design gear for you cause.  Create shirts, hats, water bottles, or other items someone can use every day to raise awareness.

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Source: https://lungdiseasenews.com/2018/02/28/rare-disease-day-can-help-raise-awareness/

Posted 7:00 PM

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